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Research & Resources

As an organization, we're committed to learning as a core part of our work. We question everything and take nothing for granted.

Because we are constantly doing research and don't launch action plans without having done lots of testing, you will find our list of resources will be building over time, so check back often, and if you come across something or someone we should share with our community, please contact us.

Our research includes:

  • Grief Guide Customer Research: Georgetown University is conducting research to help us determine how many playbooks we will need to develop, based on any number of factors like a child’s age, gender, etc. 

  • Focus Groups: Georgetown was also retained to conduct focus groups over the next two years. This research will help us understand how best to support children and families, and where gaps may exist. 

  • Academic research: Being conducted by Dana-Farber / Harvard Medical School, is nearing completion. 

  • Ethnographic and Clinical research has not yet been designed, and we are interested in soliciting proposals.  

  • We are also looking to fund "big ideas" that help advance the science significantly

Non-Profits and External Resources

US Non Profits

Kesem, support for children whose parent has cancer

Gilda's Club, a community for people whose lives are touched by cancer. 

UK Charities

Childhood Bereavement UK helps people rebuild their lives when a child grieves or dies. 

Grief Encounter, supporting bereaved children and young people

Studies and Articles

Upping my game as a parent...
Zahlis EH, Shands ME, Lewis

FM (2020).

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Please support
our cause

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