top of page

Our Research

As an organization, we're committed to learning as a core part of our work. We question everything and take nothing for granted.

Because we are constantly doing research and don't launch action plans without having done lots of testing, you will find our list of resources will be building over time, so check back often, and if you come across something or someone we should share with our community, please contact us.

Our research includes:

  • Grief Guide Customer Research: Georgetown University is conducting research to help us determine how many guides we will need to develop, based on any number of factors like a child’s age, gender, faith, income, etc. 

  • Focus Groups: Georgetown was also retained to conduct focus groups over the next two years. This research will help us understand how best to support children and families, and where gaps may exist. 

  • Academic research: Being conducted by Dana-Farber Cancer Institute / Harvard Medical School, is nearing completion. 

  • Ethnographic and Clinical research has not yet been designed, and we are interested in soliciting proposals.  

  • We are also looking to fund "big ideas" that help advance the science significantly.

Non-Profits and External Resources

US Non-Profits & Other Resources

A grief camp working to ensure that every child affected by a parent's cancer is never alone.

The Mesothelioma Center

An organization that is dedicated to helping families who are dealing with asbestos and mesothelioma.

Gilda's Club

A community organization offering free support, education, healthy lifestyle, and social programs for anyone impacted by any type of cancer with both virtual or in-person programming.

Mass General - Finding Help

A useful resource to know when to seek professional help for yourself or a loved one, and a breakdown of the different types of mental health providers.

Inheritance of Hope

Serving young families facing the loss of a parent due to terminal illness with resources and relationships for each family member.

UK Non-Profits & Other Resources
Childhood Bereavement UK

Helping children, young people, parents, and families rebuild their lives when a child grieves or dies.

Grief Encounter

Providing free professional and specialist bereavement support services for nearly two decades.

It's Time

Offering free peer support for young people who have lost a parent.

The Tide Inside
by Katy Towse (Author), Molly Jones (Illustrator)

Supports children going through grief by helping them to understand the range of feelings and emotions they may be experiencing.

Resources for Families
Trust & Will

A digital estate planning and settlement platform with a mission to help every family leave a legacy.

Tailored Yarn

Bespoke Bereavement Books - specially designed fictional stories which preserve memories.

Studies & Articles
Upping my game as a parent: Attributed gains in participating in a cancer parenting program for child-rearing parents with advanced cancer
Zahlis EH, Shands ME, Lewis FM (2020).
chayene-rafaela-nGwkIZFelko-unsplash (1).jpg

Please support
our cause

bottom of page